Welcome to the "Epilepsy in a Nutshell" blog!
Why start a blog on Epilepsy? The answer is fairly simple. We are entering a new age in health care where patients (and family/friends of patients) want to empower themselves with information. The flow of knowledge from clinical and basic science realms- especially as it pertains to epilepsy- is not readily accessible. Therefore, the purpose of this blog is to distill and relay important information to those of you living with epilepsy.
The title "Epilepsy in a Nutshell" harkens back to my grade 9 science class where my teacher used to tell us "it's all up there in a nutshell grade 9". This was his way of empowering us to use our brains and sort through the problems. The title isn't meant to suggest that epilepsy is a simple subject. On the contrary- there is nothing more challenging than trying to understand how the brain works, or why it isn't working the way we want it to. As you probably already know, there are no easy answers in this field. Fundamental questions like "what is a seizure", "who gets epilepsy" and "what is the best treatment for my seizures" are still being debated. Regardless, I will address all of these questions here and together we can try and make sense of it all.
I will make a few blog posts today, just to populate the blog. My goal is to make one or two posts each week. Inevitably, I will post information on "what is epilepsy", etc. But, there are many sites out there already dealing with that (see links). My vision for this site is to address issues facing those living with epilepsy.
Well, I hope you find the information posted here useful. Please feel free to comment below or email me if you want me to review a specific topic. I will do my best to cover many of the relevant topics facing those living with epilepsy. To keep things exciting, I will also call on colleagues and mentors from time-to-time to post the "latest and greatest" in their subfield of epilepsy research.
So here we go ...
Sunday, December 9, 2007
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6 comments:
Hey Kirk,
I just want to thank you for starting this site about epilepsy. I was diagnosed with epilepsy as a young child, living in a small town. Epilepsy wasn't something anybody wanted to confront, due to the lack of understanding of the subject. It is nice to see a place for families to go to for support outside of the hospital.
Erin Brakefield
Erin, great to hear from you! Let's catch up via email sometime soon.
kirk(dot)nylen(at)gmail(dot)com
Kirk.
It is with great interest that I read your reasons for starting "Epilepsy in a Nutshell" and perhaps, one day, it's name will be re-coined to "Understanding Epilepsy in a Nutshell".
I am writing to suggest a link to our website at wwww.epilepsyniagara.org.
I am sure our organization will be linking to your site as well.
Sue Aubin, President
Epilepsy Niagara.
Thanks Sue. I just added a link to your organization's website. I love the picture of the Falls on your main page.
Feel free to suggest specific topics that you or your members would like to see covered.
In the New Year, I'm planning to have some special "Guest Posts" that will be exciting. Stay tuned!
Kirk.
Hi Kirk,
Thanks for this website, I'm surprised I haven't come across it sooner. I was diagnosed with epilepsy when I was 13 so growing up in my teen years was a very difficult time for me because I was unable to share my feelings with others. I'm now 19 and have been fortunate enough to find support groups to help me better understand my feelings. I appreciate this site and hope to see it go farther!
Brooke
Thank you Kirk your information was very informative, yet digestable.
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